The Lily Foundation

The Lily Foundation was founded in 2007 by Liz Curtis in memory of her daughter Lily, who died from Mitochondrial Disease at eight months old. Finding little in the way of specialist knowledge or support available to help her through her ordeal, Liz set out to provide answers for herself and others in her situation.

What began as an informal network of family and friends quickly grew into a national charity which today supports over 1,000 families.

Run by a small team of dedicated staff backed by a medical board drawn from the UK’s top centres for Mitochondrial research, the Lily Foundation forms a vital link between patients, doctors and medical science bodies.

Mitochondrial Disease, or ‘mito’, is the term given to a group of medical disorders caused by mutations in Mitochondria, the tiny organelles that are present in nearly every cell in our bodies and which generate about 90% of the energy we need to live. Cells cannot function properly without healthy Mitochondria, so when they fail the consequences can be serious. There is currently no cure.

The Lily Foundation is the UK’s leading Mitochondrial Disease charity and the largest charitable funder of Mitochondrial research in Europe. Their mission is to improve the lives of people affected by Mitochondrial Disease, while working towards a future where Mitochondrial Diseases can be effectively treated or cured.

Every day a child is born in the UK who will develop Mitochondrial Disease, yet we still have very limited treatments and no cure.

Together we can change this.

On October 2nd 2022 Tim Brett completed the Marathon in support of the Lily Foundation – a charity close to Tim’s heart. Lily was a friend’s daughter who lost her battle to Mitochondrial Disease at the age of eight months – the Lily Foundation was set up to give hope, support and answers to the children and families that face the challenges of this life-limiting and incurable disease.

The Lily Foundation kindly offered Tim one of their runner places and he pledged to raise as much as he could through his network of friends, family and clients.

Tim raised over £6,000 for the Lily Foundation.

Every other day in the UK, a baby is born who may develop mito. There are currently no effective treatments, and no cure, for this complex and life-limiting disease.

So every penny you can spare for this charity, whether that’s £5, £10 or any other amount, will go towards raising awareness of the disease and funding the pioneering research that’s needed in order to discover treatments and a cure for it, as well as supporting children and adults affected by the disease as they navigate their mito journeys.